I am my mum’s carer by Alfie, aged 6.
Alfie, aged 6, talks about his role as a young carer, looking after his mummy.
November 9 2019Read Blog
Hospital Play Workers, more than just a bit of fun!
by David Bara You might call them play workers, they are the people who you’ll find doing fun things in the hospital play rooms or who come and visit you by your hospital bed with armfuls of stickers, but did you know their proper title is likely to be Health Play Specialists (in the UK) …
December 21 2019Read Blog
Crohn’s Disease, diagnosing my daughter.
by Gail Crampton Gail Crampton talks about the journey to diagnose her daughter with Crohn’s disease and why it has led her to campaign and write a book to help others. Crohn’s – it started with stomach pains When my daughter, Isabelle, was 6 she began having severe stomach pains, nausea and no appetite. It …
February 16 2020Read Blog
A story about Myalgic Encephalomyelitis and hidden illness. Gemma Everson talks about her husband’s diagnosis of Myalgic Encephalomyelitis; how it impacted on her family and led her to write a children’s book. Our story began in July 2017. We had just welcomed our second daughter, Gracie, into our family and life was seemingly perfect. I …
April 9 2020Read Blog
Living with a Disabled Sibling.
Grace Williams has a brother with severe autism, she has also just finished a finished a degree in BA (Hons) Special Education and has experience as a teaching assistant in special schools. Here she discusses why siblings should feature more when care provision is being discussed for a disabled person, and why they need support too.
July 7 2020Read Blog
7 year old Alfie is his mum's primary carer. Here he talks about the impact that Covid-19 and the Lockdown has had on him and how he feels about it.
July 14 2020Read Blog
Life with hidden disabilities
Sarah* is a student at university who also has a caring responsibility for her younger brother. He . He has been diagnosed with Post-Traumatic Stress Disorder (PTSD), Anxiety, Depression, Psychosis and Attention Deficit Hyperactivity Disorder (ADHD). Here she talks about her brother's needs, how he hides his mental health illnesses and what support he needs.
December 17 2021Read Blog